Those of us who work in CF are compelled to discourage people with CF from socializing because of the risk of increased infection. There is a particularly nasty bacterium called B. Cepacia that is easily spread between CF patients. Having this bacteria could seriously decrease the life span of the CF patient. This bacteria is the reason why CF camps are discontinued in the 90s. An inherited condition, cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. Normally, these secretions are thin and slippery, but in cystic fibrosis, a defective gene causes the secretions to become thick and sticky.
Cross-infection at events
You might also wonder whether it really is risky for a couple with cystic fibrosis to be around each other. The answer is yes, but not necessarily for the reason you might think.
Feb 24, Why can't cystic fibrosis patients be near each other? I'm watching Grey's anatomy and they told a couple that they couldn't be together because they both had cystic fibrosis. Can someone please explain why.
Here's a basic overview of the disease in the movie and how it compares to real life, including why CF patients can't be around each other. Cystis fibrosis CF is a life-threatening, inherited disease that causes progressive damage to organs including the lungs, pancreas, liver, intestines, sinuses, and sex organs. Affecting about 30, people in the United States and 70, people worldwide, cystic fibrosis is the most common lethal genetic disorder, says Mark Wylam, M. Fluid lines the lungs to help cilia hair-like protrusions sweep germs out of the airways to be swallowed or coughed up, explains Wylam.
In people with cystic fibrosis, that layer is significantly reduced due to a gene mutation that causes a defect in a protein cystic fibrosis transmembrane regulator, or CFTR that moves salt in and out of cells.
Why cant cf patients dating each other
This causes the fluids in the lungs and other organs to be thick and sticky, so instead of moving things along, it plugs up tubes, ducts, and passageways. This traps germs, causing frequent, persistent infections. People with cystic fibrosis may not have any symptoms for a long time, even as their lung function gradually decreases. These symptoms increase in frequency while the germs in the lungs become increasingly virulent and resistant to antibiotics.
Shortly before my medical training, there were a lot of "CF camps" out there where children with CF could get together, bond, share their experiences with each other, learn about their disease, etc. They were great for the young patients' morale. Doctor answers on Symptoms, Diagnosis, Treatment, and More: Dr. Fields on why cant cystic fibrosis patients date each other: Patients with cystic fibrosis are highly susceptible to lung infections. As a result, if they spend a lot of time together, they can readily swap infections. This is one case where you should shun your parents' otherwise good advice on sharing. for topic: Why Cant Cystic. Jul 05, People with CF are susceptible to infections and bugs which live in the lungs and because no two patients are exactly the same, they will be more likely to develop some infections over others. Two cystic fibrosis patients meeting each other in person will increase the risk of each one developing infections from the different bugs in each other.
That can lead to frequent hospitalizations, weight loss, functional decline, and eventually respiratory failure, says Wylam. Men with cystic fibrosis are also born without a vas deferens, the tube that delivers sperm from the testicles to the penis. And at least two thirds of CF patients also have problems with their digestive system, says Wylam. Ducts in the pancreas can become blocked, reducing absorption of vitamins and nutrients and potentially leading to diabetes.
Mar 15, Men with cystic fibrosis are also born without a vas deferens, the tube that delivers sperm from the testicles to the penis. And at least two thirds of CF patients also have problems with their. Feb 24, There is a particularly nasty bacterium called B. Cepacia that is easily spread between CF patients. Having this bacteria could seriously decrease the life span of the CF patient. This bacteria is the reason why CF camps are discontinued in the 90s. People with cystic fibrosis should never meet each other, as they carry bacteria within their lungs that could be harmful to each other. For people with cystic fibrosis (CF), cross-infection poses serious health risks - people with CF grow bugs in their lungs which are usually harmless to people who don't have the condition, but can be easily.
And bile ducts in the liver can also become clogged, causing scarring of the liver and cirrhosis. Having just one copy from one parent makes you a carrier without having the disease. The mutation causing cystic fibrosis is most common in white people of Northern European ancestry.
When There's More Than One Person With CF in the Same School
In the US, all newborns are screened for cystic fibrosis within first few days of life, since early detection and treatment improves outcomes, says Wylam. In addition to chronic lung infections, complications of cystic fibrosis can include polyps abnormal growths in the nose, nutritional deficiencies, diabetes which affects about 30 percent of people with cystic fibrosisliver problems including gallstones, intestinal obstruction, osteoporosis, and dehydration caused by electrolyte imbalance.
It states that starting at birth, people with cystic fibrosis should maintain a distance of at least six feet from other cystic fibrosis patients and people who are sick to reduce their risk of exposure to germs-the most dangerous of which can preclude a lung transplant. The rule excludes people living in the same household, since they probably already share the same bacteria anyway.
But if the lungs of just one person in the couple contain virulent germs, a romantic relationship could be risky for the other person.
Although cystic fibrosis is a rare disease, in some schools there may be more than one person with CF present. Germs are a major concern for people with CF, but there are steps you can take to help students and faculty with CF lower the risk of cross infection. Mar 15, Why can't cystic fibrosis patients be around each other? In , the Cystic Fibrosis Foundation (CFF) came out with the "six-foot rule" to minimize cystic fibrosis patients' exposure to bad. Nov 15, Dr. Miller responded: Sharing. Patients with cystic fibrosis are highly susceptible to lung infections. As a result, if they spend a lot of time together, they can readily swap infections. This is one case where you should shun your parents' otherwise good advice on sharing.
People with CF can and do have physical relationships like anyone else. Treatment for cystic fibrosis includes medications and therapies to treat infections and improve lung function antibiotics, anti-inflammatory medications, mucus-thinning drugs, bronchodilators, chest physical therapy, pulmonary rehabilitation. Enzyme medications can help the body better absorb nutrients, while vitamin and sodium supplements make up for nutritional deficiencies.
Many people eventually have surgery to help with breathing problems and blocked bowels. There is no cure for cystic fibrosis. Treatment, however, can ease symptoms and reduce complications. In the s, children with CF rarely lived long enough to attend elementary school. On average, people with cystic fibrosis live into their mid- to lates, although many people today are living into their 40s and 50s.
Respiratory failure is most common cause of death.
Living with Cystic Fibrosis
United States. Type keyword s to search. Today's Top Stories. The Difference Between Situps and Crunches. The 50 Happiest Songs of All Time. CBS Films. What is cystic fibrosis?
Is cystic fibrosis contagious through kissing? How and when is cystic fibrosis diagnosed? What are the symptoms of cystic fibrosis? Symptoms of cystic fibrosis include: saltier sweat and salty-tasting skin wheezing shortness of breath persistent cough, sometimes with phlegm recurrent chest colds frequent sinus infections year-round allergies frequent lung infections pneumonia or bronchitis trouble gaining weight or growing greasy, foul-smelling stools severe constipation In addition to chronic lung infections, complications of cystic fibrosis can include polyps abnormal growths in the nose, nutritional deficiencies, diabetes which affects about 30 percent of people with cystic fibrosisliver problems including gallstones, intestinal obstruction, osteoporosis, and dehydration caused by electrolyte imbalance.
Why can't cystic fibrosis patients be around each other?